The last two weeks have been exhausting. I don't mean it in a complaining way...more just a statement of fact. I'm tired. I'm tired of hospital chairs and hospital food, I'm tired of having my babies in two entirely different towns, I'm tired of this whole ordeal. And even though I know we've made it so far, and we are so much closer to the end than ever before, I'm just ready for it all to be done with.
Today was just a waiting day. No big changes for Mia, slightly lower settings on her new ventilator and slightly lower doses of Morphine. She continues to look better each day and we had plenty of cuddling time today. She still has a Repogle, which is a tube that sucks out the contents of her stomach. We are hoping it can be removed tomorrow and she can begin to eat with a feeding tube. Poor little thing is so eager to eat right now. She clearly isn't satisfied sucking on a pacifier without getting food in return, but for now, it keeps her mostly quiet.
My family brought Laci down for a visit this evening, and we certainly aren't the only ones ready to return to a normal life. We brought Laci in the room to see Mia tonight, while the nurse kindly "looked the other way" for a few minutes. It was their first meeting in person, and was a far cry from what I had envisioned their first meeting would be like. It was rushed and we didn't get any pictures, but Laci was very excited to see her sister, saying, "Baby!" I told her that the baby in the crib is her baby sister, Mia, and she repeated "Mia" as she patted my now empty tummy. It was very sweet and I could tell her little brain was trying to piece all the facts together. I don't know how much she understands, but I know she is a smart little girl and I hope that seeing her little sister tonight helps her cope a little better.
~ we certainly aren't the only ones feeling a little tired and cranky ~ |
So many people have commented on my strength through this ordeal, even saying, "I don't know how you do it." To them I would like to say three things:
First, thank you.
Second, I don't feel strong very often. Occasionally, I have moments where I feel like I can do anything, but it is a roller coaster ride with crashes so low that I can do nothing but cry.
Third, anyone can do what I, what WE, are doing. When it is your child's life on the line, your family on the line, everything you've worked hard to build on the line, you will do anything to hold it all together. The human body is an amazing thing, and even when you think you can't do anymore, even when you think you don't have any energy left, you will find that you CAN keep going, and you WILL keep going. No doubt, it is more difficult if you don't allow others to help boost you back up...I have found great strength in prayer, in reading the comments from family and friends, and even a little self-pep talk now and then. Some mornings, I wake up and wish I could fast forward to the end or at least just go home. But, even on my worst days, I keep going because I HAVE to, because it is the only way to get to where I want to be. And if you were in my position, you would and COULD do it too.
Just hang in there Tonya you are doing so good and I don't know how you do it. Everyone is here for you, Mia and your whole family at least in spirit. Soon this will all be something in from the past. But until just stay strong love.
ReplyDeleteI hope this all ends soon for you and your family. You have two beautiful daughters and they both have awesome parents! You are correct that when it comes to your children and family you do what you have to do. Keep strong, we will continue praying for Mia and all of you. I wish we could have come down there this last week, but had colds soooo no way. Hopefully we can see you this coming week. hugs
ReplyDeleteMark and Kathy
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ReplyDeleteGod has given you an amazing family - in your husband and two precious little girls. He also has given YOU to them. Even though we don't know each other well, we are family too. And we are so impressed with how all of you are coping, loving and growing strong through this challenge. You and Ryan are human and more than allowed some down times...it's how you have come back that counts. Always in our prayers. Bill and Stephany
ReplyDeleteI'm so new at this...deleted when I wanted to put a picture...oh well...there's a laugh for the day.
hI !!! Tonya,
ReplyDeleteI am following your blog closely, and its refreshing to see you haven't got as much to write about. I hope you do not take that the wrong way. Baby Mia, as opposed to "Mama Mia" is demonstrating just how much we wants to live, and her strength seems to be beyond what we expect from a newborn. We have come to expect all came normally. However, I feel the the touch of your hand to her hair, and your presence is something she feels. I believe she knows you are there and the bonding is taking place against all odds.
I tried posting my e-mails to your blog with no success at all. It keeps bouncing back to me, saying "Post comments". I am using your e-mail as an unwanted substitute.
I feel a day coming soon when you will be able to say "I love you all, but I'm going home with my baby Mia."
If you can post my comments to your blog, please feel free to do so. Incidentally, I see family resemblances to baby Mia's pictures. She is beautiful. I guess she comes from good stuff.
I send my love,
Auntie Carolyn